Showing posts with label disability. Show all posts
Showing posts with label disability. Show all posts

Monday, November 17, 2014

GOOD GRIEF!

It occurred to me today that I am grieving. I read a quote that someone had posted and here it is: "The reality is that you will grieve forever. You will not 'get over' the loss of a loved one; you will learn to live with it. You will heal and you will rebuild yourself around the loss you have suffered. You will be whole again but, you will never be the same. Nor should you be the same, nor would you want to." -- Elizabeth Kubler-Ross and John Kessler

I realized today that I was in a state of grief, and have been for some time. I was in shock when they first told me me I would need immediate heart surgery or a grave digger. Well, not in those words exactly, but you get the point. Upon being awakened after surgery and once I had my wits about me, I realized I was in horrific pain. I was told by the end of six weeks I would feel like a new person, that my pain would largely be gone, that I'd be able to breathe again without gasping for every breath. I looked forward to the surgery and was terrified at the same time.

I started grieving the day I realized that six months had passed and the horrific pain had never gotten better and would NEVER get better. I am grieving the loss of life as I knew it, which hadn't been particularly good for a long, long time. I've been ill forever it seems. But there were some things I could still do. Although physically disabled, I generally enjoyed life. I could get around, I could walk with my dogs, I could go places, do things--see actual people and interact with them. I could do things and occupy my time. I could clean my own goddamned house. I could cook myself a meal. I could get dressed all by myself. I could take a bath all by myself. I could walk out into the back yard and not have to take a phone with me in case I fell. I could make it to the bathroom before I peed in my pants. I grieve for my own lost life. Dammit, I had plans. Places to go, people to see, things to do. Gone. It's all gone. I am not grieving over the death of someone close, but it is grief nonetheless.

You know that stupid card the nurses hand you? The Pain Card? It shows a completely neutral face for zero pain. The faces get progressively worse indicating more pain, until you get to number 10, the worst pain. The scale only goes to 10. You are not supposed to be any more painful than level 10. I have never been on that 1-10 scale. I rate my physical pain at 12. In fact, this is the best pain chart example I could come up with:





Now, on top of the physical pain I have, I also have the pain of grief, which is a much different type of pain. The pain of my particular grief is more like a giant, open, raw, weeping, festering sore. It is not only excruciatingly painful, but it is ugly to look at. Slowly, over a period of many, many months, it began to get minutely better at the sides of the open wound. Microns of new flesh began to form at the edges, slowly, ever so slowly beginning to close. It continues that way unless someone happens to rake it open with a careless mistake, or a heartless comment. Maybe, just maybe, years from now, if I last that long, my wound will form a scab over the top. The wound will still be there, still excruciating, but not weeping, not festering. Maybe, just maybe in a few more years I'll grow some scar tissue over the wound. 

Scar tissue has a pain all its own. It hurts like hell if someone presses on it, or it gets bumped on a sharp table edge, but it won't bleed. The wound of grief never completely heals, no matter how much time passes. I may grow scar tissue, that's the absolute best that could happen. I am left with a giant, unsightly scar that will never, ever go away. It's a reminder that something, once beautiful, is now gone forever, reduced to scar tissue and gallons upon gallons of shed tears.

I have not 'learned to live with it," I am forced to live with it. I have not "rebuilt around it" because I will never be whole again, there is nothing left upon which to build. There is just a smidgen of truth to the above quote--just enough to catch your eye. The truth is I WILL grieve forever and I will NEVER be the same. The rest is bullshit, plain and simple. Elizabeth Kubler-Ross and John Kessler, I am here to tell you, you are both WRONG! How dare you feed false hope to those who grieve? Everyone grieves in their own way, that is the only certainty. You won't know until it happens to you. You can both take your precious quote and stuff it in your asses. Sideways.

Wednesday, September 5, 2012

DUELING DOCS - A TALE OF TWO TITTIES

At this very moment Dr. Whackadoo and Dr. No-Fly are duking it out over my medications. I wish I could get them in the same room and mediate.  No-Fly says Whackadoo's meds are poison. Whackadoo says I must take the crap he's prescribed AS prescribed.  I am inclined to agree with
Dr. No-Fly, unfortunately I just can't stop taking these drugs, as much as I'd like to do it.

The subject of today's battle in particular is Neurontin, aka Gabapentin, which has turned me into a rag doll.  I'm weak, short of breath with any movement, unable to walk more than 20 feet - plus...THE KNIFE IN MY CHEST IS KILLING ME.  How many times do I have to tell them that before someone hears? This drug is obviously not helping my pain. The whole reason Whackadoo exists is to treat pain. Nothing else, just pain.

Let me give you today's pain example: This morning in the bathtub, gingerly wiping *Lefty* with a soapy washrag caused me to scream and gasp for breath.  WTF?

Dr. Whackadoo is a small, scrawny man. I could easily crush him with one blow, even in my weakened state.  I think constantly about crushing Whackadoo. I think about grinding my heel into his adam's apple after he's hit the floor. Of course, this crushing and grinding does not happen until I've fastened a bulldog binder clip to each of his nipples and given them several twists, so he has a slight inkling of how my chest feels. I'd have to tie him up first because I know he'd never hold still. He's the type that would go all squirmy and piss himself in the face of any threat. That, and I can't run him down due to having the legs of a rag doll.  Well-played, Dr. Whackadoo--incapacitate the linebacker-sized woman with drugs BEFORE she does you great bodily harm. Pfft.

I can lay on my couch.  I can walk to my bathroom.  I can walk into my garage and get in the car. I can feed my dogs and let them out. If it's not boiling hot outside, I can even stand on my patio while the dogs are doing their dog things. I really can't do much else, other than watch life go on around me without being a part of it. So, if some tragic event happens to befall Dr. Whackadoo, I have a perfect alibi. Unless the Memphis PD has a Jedi Mind Trick or Voodoo Department I figure I'm safe. Oh, but a girl can dream...

Friday, August 24, 2012

Turtling

I've been reminded that it has been some time since I made a post. Permanently losing more than half my entries kind of took the wind out of my blog sail.

I am living day to day, sometimes hour to hour, trying to kick the benny habit. I have made it to half the original dose. I can barely function. I can't sleep. I am ravenously hungry. I am so stressed I can do little other than make short forays away from my house for necessities, not to mention the stupefying heat that is keeping me indoors. My weak little grinch heart cannot take the heat and humidity. I have not unpacked anything and my lawn looks like shit.

Speaking of shit, I have managed to keep the back yard relatively shit free for the simple reason that the super werewolf smelling powers I have developed will not let me tolerate the stink of "barnyard."

I still feel like I have a knife in my chest. My boobs are still killing me. My doctors are still idiots. I am playing  the mindless Facebook game, CastleVille, just so I won't kill anyone. Life turtles onward.


Tuesday, June 12, 2012

Photophobia

At Whackadoo's office today I was straining my dim eyes to see what the hell he was typing into my file while trying not to be noticed at the same time.  The only word I could see--get this-- was "photophobic."  Har Har! I guess that explains the extreme vitamin D deficiency, the skin whiter than milk (I make milk look gray), and the Transitions lenses in my glasses.  Hrmph.

I have the lorazepam thing ironed out for the next 60 days, at which time I'll get a small reduction in the doseage, etc., etc., ad infinitum.

He has quadrupled one of the other drugs I take, Gabapentin, in the meantime.  Quadrupled!!!  WTF?Gabapentin is the drug responsible for my clumsiness.  Great.  Just fucking great.  I can't wait to fall so often that I just choose to lay on the floor to roll and scoot around the damned house, channelling Eddie Murphy in *Trading Places.* He actually said, "Aww come on, just TRY it. You can always stop taking it."  I rolled my photophobic eyes at him.  Bastard.  I could almost see demon horns sprouting from his forehead.



I'm going to TRY these doseages - I've got nothing to lose.  I do have a wheelchair if I need it.  It took me a long time to get out of it the last time I got REALLY sick.  I'd like to stay out of it.  I'd rather shove the Gabapentin up Whackadoo's ass, if need be, than get back in the damned chair.  I promised to badger him on the phone if it wasn't working, and I reminded him the neurologist told me to be very careful with Gabapentin.

::drums fingers on desk and dreams of some kind of fluffy, pink, girly, froo-froo drink and a menthol cigarette:: (Mind you, I don't drink or smoke.  Shit.)