It occurred to me today that I am grieving. I read a quote that someone had posted and here it is: "The reality is that you will grieve forever. You will not 'get over' the loss of a loved one; you will learn to live with it. You will heal and you will rebuild yourself around the loss you have suffered. You will be whole again but, you will never be the same. Nor should you be the same, nor would you want to." -- Elizabeth Kubler-Ross and John Kessler
I realized today that I was in a state of grief, and have been for some time. I was in shock when they first told me me I would need immediate heart surgery or a grave digger. Well, not in those words exactly, but you get the point. Upon being awakened after surgery and once I had my wits about me, I realized I was in horrific pain. I was told by the end of six weeks I would feel like a new person, that my pain would largely be gone, that I'd be able to breathe again without gasping for every breath. I looked forward to the surgery and was terrified at the same time.
I started grieving the day I realized that six months had passed and the horrific pain had never gotten better and would NEVER get better. I am grieving the loss of life as I knew it, which hadn't been particularly good for a long, long time. I've been ill forever it seems. But there were some things I could still do. Although physically disabled, I generally enjoyed life. I could get around, I could walk with my dogs, I could go places, do things--see actual people and interact with them. I could do things and occupy my time. I could clean my own goddamned house. I could cook myself a meal. I could get dressed all by myself. I could take a bath all by myself. I could walk out into the back yard and not have to take a phone with me in case I fell. I could make it to the bathroom before I peed in my pants. I grieve for my own lost life. Dammit, I had plans. Places to go, people to see, things to do. Gone. It's all gone. I am not grieving over the death of someone close, but it is grief nonetheless.
You know that stupid card the nurses hand you? The Pain Card? It shows a completely neutral face for zero pain. The faces get progressively worse indicating more pain, until you get to number 10, the worst pain. The scale only goes to 10. You are not supposed to be any more painful than level 10. I have never been on that 1-10 scale. I rate my physical pain at 12. In fact, this is the best pain chart example I could come up with:
Now, on top of the physical pain I have, I also have the pain of grief, which is a much different type of pain. The pain of my particular grief is more like a giant, open, raw, weeping, festering sore. It is not only excruciatingly painful, but it is ugly to look at. Slowly, over a period of many, many months, it began to get minutely better at the sides of the open wound. Microns of new flesh began to form at the edges, slowly, ever so slowly beginning to close. It continues that way unless someone happens to rake it open with a careless mistake, or a heartless comment. Maybe, just maybe, years from now, if I last that long, my wound will form a scab over the top. The wound will still be there, still excruciating, but not weeping, not festering. Maybe, just maybe in a few more years I'll grow some scar tissue over the wound.
Scar tissue has a pain all its own. It hurts like hell if someone presses on it, or it gets bumped on a sharp table edge, but it won't bleed. The wound of grief never completely heals, no matter how much time passes. I may grow scar tissue, that's the absolute best that could happen. I am left with a giant, unsightly scar that will never, ever go away. It's a reminder that something, once beautiful, is now gone forever, reduced to scar tissue and gallons upon gallons of shed tears.
I have not 'learned to live with it," I am forced to live with it. I have not "rebuilt around it" because I will never be whole again, there is nothing left upon which to build. There is just a smidgen of truth to the above quote--just enough to catch your eye. The truth is I WILL grieve forever and I will NEVER be the same. The rest is bullshit, plain and simple. Elizabeth Kubler-Ross and John Kessler, I am here to tell you, you are both WRONG! How dare you feed false hope to those who grieve? Everyone grieves in their own way, that is the only certainty. You won't know until it happens to you. You can both take your precious quote and stuff it in your asses. Sideways.
Offbeat topics, dark humor, heart surgery recovery, and a sprinkling of odd poetry.
Showing posts with label heart bypass surgery. Show all posts
Showing posts with label heart bypass surgery. Show all posts
Monday, November 17, 2014
Thursday, January 31, 2013
OWW MY SCREAMY HEART
Spent all day with the Heart doc. Left feeling crushed. They'll be calling me tomorrow to make test appointments. He suspects blockage in additional vessels. I can't breathe. I can't breathe because all the air has suddenly been sucked out of my world by the enormous vacuum called *bad news.* I have the misfortune of having shitty genes and an abundance of lipoprotein-a. I am about to crawl under the porch, taking my nitro pills with me. Nobody better get a stick and poke at me, because by God I just might snap.
Monday, June 11, 2012
Hooked on Bennies
Almost anyone with an ongoing serious illness knows that contracting an infection of some sort, will make the symptoms of the existing condition much worse. The same is true for an extreme allergy attack. What this means for me, in my weakened state, is that a common cold can very easily kill me without the proper intervention and treatment. Over the past month I got a double whammy.
The massive eye infections I was having turned out to be a drug reaction. During the Queen's flotilla I started with giant hives. MISERABLE! The first call I made was to Dr. Whackadoo regarding the hives, since he had dispensed the most recent prescriptions I have, PLUS I know I should not just stop taking all the heart meds I take. The orders were to stop everything and take Benedryl, so I stopped taking Whackadoo's scripts. Yes, my allergic reactions stopped, but what ensued was massive drug withdrawal. I wound up in the ER last Wednesday, since I was certain I was dying. I was absolutely frantic.
I had never before had a problem just stopping opiates/opioids. The problem, by process of elimination, turned out to be lorazepam, AKA "bennies"... apparently one should never just STOP taking this drug. I am going to have to wean off over a period of months. I have been taking it for more than a year. Many of my so called *physical symptoms* are actually side effects of lorazepam. To my horror, I read that withdrawal from this drug can last up to a year and some are never able to successfully stop taking it. I also read that withdrawal symptoms can be life threatening, especially if the individual is not basically healthy. ::sniff:: The hospital sent me home with a script for lorazepam in a higher dose.
I was originally prescribed this drug by the cardiologist who stopped saying "You're going to be OK," quite some time ago. I have a death sentence hanging over my head--an agonizing one. Wound pain has returned....oh probably threefold (on a scale of 1-10 I am at 27.) Can't take a breath without wanting to scream. I wonder how long I can last like this? This is the first day I have been fully lucid. I am not certain lucidity is the best option.
The massive eye infections I was having turned out to be a drug reaction. During the Queen's flotilla I started with giant hives. MISERABLE! The first call I made was to Dr. Whackadoo regarding the hives, since he had dispensed the most recent prescriptions I have, PLUS I know I should not just stop taking all the heart meds I take. The orders were to stop everything and take Benedryl, so I stopped taking Whackadoo's scripts. Yes, my allergic reactions stopped, but what ensued was massive drug withdrawal. I wound up in the ER last Wednesday, since I was certain I was dying. I was absolutely frantic.
I had never before had a problem just stopping opiates/opioids. The problem, by process of elimination, turned out to be lorazepam, AKA "bennies"... apparently one should never just STOP taking this drug. I am going to have to wean off over a period of months. I have been taking it for more than a year. Many of my so called *physical symptoms* are actually side effects of lorazepam. To my horror, I read that withdrawal from this drug can last up to a year and some are never able to successfully stop taking it. I also read that withdrawal symptoms can be life threatening, especially if the individual is not basically healthy. ::sniff:: The hospital sent me home with a script for lorazepam in a higher dose.
I was originally prescribed this drug by the cardiologist who stopped saying "You're going to be OK," quite some time ago. I have a death sentence hanging over my head--an agonizing one. Wound pain has returned....oh probably threefold (on a scale of 1-10 I am at 27.) Can't take a breath without wanting to scream. I wonder how long I can last like this? This is the first day I have been fully lucid. I am not certain lucidity is the best option.
Friday, September 16, 2011
Fall-like Poop Rake
What a lovely and cool day, perfect for poop raking, and otherwise tending my fragrant garden. I can last a lot longer if it's not punishingly hot outside. I so wish the dogs had thumbs.
I stopped the mowing service for the year. I managed to get Starvin' Marvin's phone number (whose actual name is Li'l T) when he came here to sell candy for school. Hopefully he'll mow for me next year and I won't have to mess with the lawn service asshats.
I'm still weak and sickly but geezo, what a difference a day makes without a diagnosis of impending doom hanging over my head.
I stopped the mowing service for the year. I managed to get Starvin' Marvin's phone number (whose actual name is Li'l T) when he came here to sell candy for school. Hopefully he'll mow for me next year and I won't have to mess with the lawn service asshats.
I'm still weak and sickly but geezo, what a difference a day makes without a diagnosis of impending doom hanging over my head.
Thursday, September 8, 2011
Bidness and a Coot
The *Southern Bidness* I was complaining about a couple of weeks ago has finally been taken care of for the time being. It was almost worth the 4 hour round trip "drive of horror" from which I now have to recover. My legs are swollen into things that kind of look like rhinoceros legs and/or umbrella stands.
I tried to pull over around every 30 minutes and get out of the car to walk around a bit - I was warned to do that by the heart doc, in case I had to take any longish drives, to try to help prevent clots. I don't think I'll ever attempt to fly again unless it's first class, or right on the wing where the extra leg room is. I doubt I could afford to fly first class so it looks like I am doomed to Chinese Fire drills every 30 minutes or so.
If I am needed somewhere in the country and they can't wait for my slow ass to drive there, they'll just have to do without me, dammit. Or maybe the train if I could get a sleeper. That might be fun, but the train is notoriously slow - it takes even longer than driving.
I met the most charming old coot today. He was like the grandpa you always wanted and kind of resembled a human-sized lawn gnome, minus the stupid hat. He was adorable, in a coot-like way, and and we had quite a conversation.
I finally make it home, after all damned day to find that SOMEONE (Tater) has *skizzled* the living room rug. ::shudder:: Like I needed to scrub the damned rug after an all day torture session with business types. Dammit. Tater is now locked in the sick room. I have demolished two entire cans of spot shot and ruined a bunch of bar towels. Frikkin dog. This will require the rug doctor. Ugh. Rice and chicken for the big old doofus...and I'm considering muzzling her when she goes out in the back yard to stop her from eating whatever the hell she's eating. Nasty. Ugh. Phooey. Rug scrubbing hurt me - will probably be extra sore tomorrow.
I tried to pull over around every 30 minutes and get out of the car to walk around a bit - I was warned to do that by the heart doc, in case I had to take any longish drives, to try to help prevent clots. I don't think I'll ever attempt to fly again unless it's first class, or right on the wing where the extra leg room is. I doubt I could afford to fly first class so it looks like I am doomed to Chinese Fire drills every 30 minutes or so.
If I am needed somewhere in the country and they can't wait for my slow ass to drive there, they'll just have to do without me, dammit. Or maybe the train if I could get a sleeper. That might be fun, but the train is notoriously slow - it takes even longer than driving.
I met the most charming old coot today. He was like the grandpa you always wanted and kind of resembled a human-sized lawn gnome, minus the stupid hat. He was adorable, in a coot-like way, and and we had quite a conversation.
I finally make it home, after all damned day to find that SOMEONE (Tater) has *skizzled* the living room rug. ::shudder:: Like I needed to scrub the damned rug after an all day torture session with business types. Dammit. Tater is now locked in the sick room. I have demolished two entire cans of spot shot and ruined a bunch of bar towels. Frikkin dog. This will require the rug doctor. Ugh. Rice and chicken for the big old doofus...and I'm considering muzzling her when she goes out in the back yard to stop her from eating whatever the hell she's eating. Nasty. Ugh. Phooey. Rug scrubbing hurt me - will probably be extra sore tomorrow.
Wednesday, September 7, 2011
:(
I cannot possibly take one more syllable of bad news. I am shutting down for the day, and possibly for tomorrow so my head does not explode.
Thursday, September 1, 2011
Cancel
I had to cancel a vet appointment I had this afternoon for Tater's annual shots & stuff. I'm just too weak to do it. Naturally I was pouring tears the whole stupid time I was trying to talk to the vet staff. They understand, at least. Tater is put on hold until they figure out what's going on with me.
I quite possibly might be all cried out for the day. My head feels strangely far away from the rest of my body--kinda floating above me like a Macy's parade balloon.
I'm afraid. The only thing I can do is try to sleep and hope I feel a little better when I wake up.
I quite possibly might be all cried out for the day. My head feels strangely far away from the rest of my body--kinda floating above me like a Macy's parade balloon.
I'm afraid. The only thing I can do is try to sleep and hope I feel a little better when I wake up.
Wednesday, August 31, 2011
Throw This
Short of breath and fatigued, I am riding my couch as per usual, just moving around less. I'm so weak. I'm trying to sleep as much as I can and not stress so much. Easier said than done.
I can get ativan filled tomorrow. Yay. Calmer living through modern chemistry. It is a drug that actually does calm me down considerably, and usually acts within 15 minutes. I wish they made a happy pill that did the same thing.
Rue, the German Shepherd, becomes distressed when I cry. If she's in her crate she whines, if she's out I get a furious face licking. Maybe she thinks my sobs are dog howls.
She will sometimes pick up a dishtowel and poke me with it, wanting to play, or poke me with a ball, and by this I mean she takes it in her mouth and shoves it at me. Poke Poke Poke. I guess she's saying, "Shut up and throw this already, enough with the howling!"
I can get ativan filled tomorrow. Yay. Calmer living through modern chemistry. It is a drug that actually does calm me down considerably, and usually acts within 15 minutes. I wish they made a happy pill that did the same thing.
Rue, the German Shepherd, becomes distressed when I cry. If she's in her crate she whines, if she's out I get a furious face licking. Maybe she thinks my sobs are dog howls.
She will sometimes pick up a dishtowel and poke me with it, wanting to play, or poke me with a ball, and by this I mean she takes it in her mouth and shoves it at me. Poke Poke Poke. I guess she's saying, "Shut up and throw this already, enough with the howling!"
Tuesday, August 30, 2011
Bad News :(
Back from the heart doc this morning - he thinks I have another blockage. I am a bundle of raw nerves and my head has reached critical mass.
I am scheduled for all the same tests I had at the beginning. Another torturous echo cardiogram for my screamy boobs, more thallium, etc.
I am kind of wondering what the point of having a new round of tests is, since I will refuse any further surgery at this point. I am certainly not keen on a second round of heart torture - it has only been 3 months since the first time. I am nowhere near healed from the first surgery, and I don't think my brain can take another round on the pump so soon. I still have lots of "Pump Head" symptoms that have not improved at all. Maybe they can do something with drugs this time. I feel devastated.
Note to self: seek out nearest neighborhood porch asap as future hideout.
I finally have an appointment with the pain specialist. The heart guy says he will probably want to do a nerve block. The pain appointment is the day after I get thallium. ::twitch:: Maybe he can do a nerve block that starts at the top of my head and ends just under my knees.
Today is the first time ever the heart doc did not say to me, "You're going to be ok!"
I am scheduled for all the same tests I had at the beginning. Another torturous echo cardiogram for my screamy boobs, more thallium, etc.
I am kind of wondering what the point of having a new round of tests is, since I will refuse any further surgery at this point. I am certainly not keen on a second round of heart torture - it has only been 3 months since the first time. I am nowhere near healed from the first surgery, and I don't think my brain can take another round on the pump so soon. I still have lots of "Pump Head" symptoms that have not improved at all. Maybe they can do something with drugs this time. I feel devastated.
Note to self: seek out nearest neighborhood porch asap as future hideout.
I finally have an appointment with the pain specialist. The heart guy says he will probably want to do a nerve block. The pain appointment is the day after I get thallium. ::twitch:: Maybe he can do a nerve block that starts at the top of my head and ends just under my knees.
Today is the first time ever the heart doc did not say to me, "You're going to be ok!"
Monday, August 29, 2011
Dammit
The cardiology nurse calls me back from the message I left on Friday. She says, "You really sound bad, you should come into the office."
Oops, I already used all my energy going to Walgreens today. Really, I'm tapped out-- I feel like a wet, wrung-out dishrag, and I explain this to her. I'm going in tomorrow morning at 10:00. In the meantime if I get feeling any worse I should to go to the ER, per the nurse.
WTH I've been like this for weeks and somebody finally notices, even though I've been complaining loud and long the entire time? Also, does that even make sense? I feel too weak to go to the doctor's office, but apparently I'll be strong enough to take myself to the ER?
So, along with sounding really bad, I FEEL really bad. I might go missing for awhile. Don't get excited, I'll be back when I can.
Oops, I already used all my energy going to Walgreens today. Really, I'm tapped out-- I feel like a wet, wrung-out dishrag, and I explain this to her. I'm going in tomorrow morning at 10:00. In the meantime if I get feeling any worse I should to go to the ER, per the nurse.
WTH I've been like this for weeks and somebody finally notices, even though I've been complaining loud and long the entire time? Also, does that even make sense? I feel too weak to go to the doctor's office, but apparently I'll be strong enough to take myself to the ER?
So, along with sounding really bad, I FEEL really bad. I might go missing for awhile. Don't get excited, I'll be back when I can.
Sunday, July 24, 2011
Oww Oww & Oww
When they crack your chest, they tell you within six weeks you should start feeling normal again. Liars! They say that so you will go away and leave them alone. They say it so you'll agree to their operations and assorted tortures before you know the full extent of what you're in for. They say it because there is no other choice for you and they have to say something. They figure six weeks is a short enough time period to keep you from running out the door, screaming. It's a barbaric operation, about like surviving an autopsy.
It has been ten weeks. I hurt. I mean I HURT. I'm not kidding. My hurt rates enough narcotic to keep me semi-conscious and enough ativan to keep me from going on a killing rampage (since I am fairly certain all killing rampages begin with a great pain.)
My left boob--the purplest one--is really screamy sore, in the way that a badly infected tooth is screamy sore. I was told it's because they used the left mammary artery in one of my grafts. Since its blood supply has essentially been cut off, the boob is saying "OMGWTF where the hell is my blood supply? I better send a distress signal!!" It is still discolored and kind of lumpy looking. Meh. It's not like I had plans to pose for Playboy, but still.
My ribs and sternum are a nightmare. I can feel them move. I can feel the radiator clamps, or whatever the hell they used to clamp it back together, under my skin...like they're trying to poke out. With each breath, every rib gives me a little stabbity stab. If the damned sheet on the bed happens to touch my chest I gasp in pain. I just fucking hurt. All of me hurts. Sometimes I can no longer distinguish which hurty part is which.
Apparently in the fall of 2008 I had a fairly significant heart attack. I remember this because I had gone to the ER during a trip to Baltimore and said specifically, "I AM HAVING A HEART ATTACK!" The ER said my EKG looked *beautiful,* and it was probably my stomach or pancreas. I said, "But what about this elephant sitting on my chest, stabbing me with a daggar?" They said, "It's your imagination." Bastards. FYI: An EKG does not show all areas of the heart.
I cut my trip to Baltimore short, came back to Memphis and was treated for Pancreatitis. They figured "holy crap she has a monster pain and it's not her heart, it MUST be her pancreas." Pfft. Shorty after this I developed an infection in my jaw and started losing bone and teeth. All of these symptoms point to heart disease. NONE of it was noticed until it was too late to fix.
My right coronary artery has a 100% blockage and the bottom of my heart is essentially dead. They didn't bypass this area because it wouldn't have helped--the tissue wouldn't revive-- it had been dead or dying for the past three years. THIS blockage was the elephant on my chest.
They did bypass the areas that could still be saved, the 70-90% blockages. I have significant heart disease and nobody noticed. I wish I could roll some heads but I don't know where to start. I had a "beautiful EKG," I have low blood pressure, I have normal range weight, and my fasting cholesterol numbers were ok. That's why they didn't notice.
My puppy finally made them notice. When I couldn't keep up with the puppy - couldn't breathe while walking around the ring at puppy class, that's when I finally got some attention. Instead of the crazy nut job with the constant pain, overnight I became the dying heart patient in need of immediate surgery.
At that point, I went into hyperdrive. I came home, arranged for care of dogs, revised will, made a new living will, paid everything that needed to be paid and set up auto-pay for everything else. Did every scrap of laundry, changed the sheets, vacuumed, and went grocery shopping for things that would be easy to fix (frozen meals)....because I knew when I got back it would be a long time before I could do any domestic crap again. I threw some toiletries in an overnight bag and went to the hospital, scared out of my mind and actively trying to not think.
The following days went by in a blur of pain. I got to go home as soon as my blood sugar levels came down to normal and I no longer needed the insulin drip. I was there for seven days.
I started to cry in the hospital. More or less I have continued to cry since I left. Apparently major depression is something common to all heart operations. They claim it's an affect of being on the heart/lung machine--part of "pump head," along with a host of other cognitive and emotional impairments.
If I had it to do over again, I would choose to just stay home and let whatever happen happen. In the future I will make sure I have a porch, just so I can crawl under it and be left alone, like an old hound dog. One thing's for damned sure, I will never have my chest opened again.
I see my Cardiologist Monday at noon. I may punch him in the mouth for good measure.
It has been ten weeks. I hurt. I mean I HURT. I'm not kidding. My hurt rates enough narcotic to keep me semi-conscious and enough ativan to keep me from going on a killing rampage (since I am fairly certain all killing rampages begin with a great pain.)
My left boob--the purplest one--is really screamy sore, in the way that a badly infected tooth is screamy sore. I was told it's because they used the left mammary artery in one of my grafts. Since its blood supply has essentially been cut off, the boob is saying "OMGWTF where the hell is my blood supply? I better send a distress signal!!" It is still discolored and kind of lumpy looking. Meh. It's not like I had plans to pose for Playboy, but still.
My ribs and sternum are a nightmare. I can feel them move. I can feel the radiator clamps, or whatever the hell they used to clamp it back together, under my skin...like they're trying to poke out. With each breath, every rib gives me a little stabbity stab. If the damned sheet on the bed happens to touch my chest I gasp in pain. I just fucking hurt. All of me hurts. Sometimes I can no longer distinguish which hurty part is which.
Apparently in the fall of 2008 I had a fairly significant heart attack. I remember this because I had gone to the ER during a trip to Baltimore and said specifically, "I AM HAVING A HEART ATTACK!" The ER said my EKG looked *beautiful,* and it was probably my stomach or pancreas. I said, "But what about this elephant sitting on my chest, stabbing me with a daggar?" They said, "It's your imagination." Bastards. FYI: An EKG does not show all areas of the heart.
I cut my trip to Baltimore short, came back to Memphis and was treated for Pancreatitis. They figured "holy crap she has a monster pain and it's not her heart, it MUST be her pancreas." Pfft. Shorty after this I developed an infection in my jaw and started losing bone and teeth. All of these symptoms point to heart disease. NONE of it was noticed until it was too late to fix.
My right coronary artery has a 100% blockage and the bottom of my heart is essentially dead. They didn't bypass this area because it wouldn't have helped--the tissue wouldn't revive-- it had been dead or dying for the past three years. THIS blockage was the elephant on my chest.
They did bypass the areas that could still be saved, the 70-90% blockages. I have significant heart disease and nobody noticed. I wish I could roll some heads but I don't know where to start. I had a "beautiful EKG," I have low blood pressure, I have normal range weight, and my fasting cholesterol numbers were ok. That's why they didn't notice.
My puppy finally made them notice. When I couldn't keep up with the puppy - couldn't breathe while walking around the ring at puppy class, that's when I finally got some attention. Instead of the crazy nut job with the constant pain, overnight I became the dying heart patient in need of immediate surgery.
At that point, I went into hyperdrive. I came home, arranged for care of dogs, revised will, made a new living will, paid everything that needed to be paid and set up auto-pay for everything else. Did every scrap of laundry, changed the sheets, vacuumed, and went grocery shopping for things that would be easy to fix (frozen meals)....because I knew when I got back it would be a long time before I could do any domestic crap again. I threw some toiletries in an overnight bag and went to the hospital, scared out of my mind and actively trying to not think.
The following days went by in a blur of pain. I got to go home as soon as my blood sugar levels came down to normal and I no longer needed the insulin drip. I was there for seven days.
I started to cry in the hospital. More or less I have continued to cry since I left. Apparently major depression is something common to all heart operations. They claim it's an affect of being on the heart/lung machine--part of "pump head," along with a host of other cognitive and emotional impairments.
If I had it to do over again, I would choose to just stay home and let whatever happen happen. In the future I will make sure I have a porch, just so I can crawl under it and be left alone, like an old hound dog. One thing's for damned sure, I will never have my chest opened again.
I see my Cardiologist Monday at noon. I may punch him in the mouth for good measure.
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